Lunch, preferably outside at a fun and tasty restaurant, is the highlight of the daytrip!
Making Infusion Day An Anticipated Daytrip
Infusion Day made into an anticipated daytrip happened when my dear friend’s husband needed to travel to a city nearly 2 hours away for his biologic dose. Really, this is a story of a need, a little creativity, and a whole lot of love.
The Need is Infusion Day
Let me introduce you to my dear friend, Renata. She has a heart for other people and is a natural problem solver. She kicked into high gear when her husband was diagnosed with ankylosing spondylitis, an autoimmune disease affecting the spine. His back was sore, he was fatigued and just didn’t feel well. Does that sound familiar? Renata wanted to do whatever she could to make the situation better.
She became her husband’s healthcare advocate. Who couldn’t use a good champion for the cause. And one with energy to top it off! She researched healthcare in the region, networking with others in the area, then helping her husband weigh pros and cons of the different options before making any decision.
They ultimately decided to drive an hour and 45 minutes each way to see a rheumatologist. It turned out to be an excellent choice. But it requires being on the road 3 and a half hours each time he has an appointment. When working and having other responsibilities, that not-so-small detail needs to be carefully considered.
In the end, her husband has been prescribed a biologic that is infused over four hours every 4 weeks. Hey, it is working so all is good! So, Infusion Day has become the need (and a solution!).
Now the infusion isn’t perfect. How many of us can relate to that! The medication starts wearing off the 4th week, but 3 weeks of relief is a good thing.
A Little Creativity to make Infusion Day special
Infusion Day, an anticipated daytrip was born. With a little imagination and creativity, they capitalized on taking in how beautiful the countryside was. The road trip is an opportunity to enjoy the change of seasons and see familiar landmarks, such as the cattle ranch and interesting buildings. It’s become a comforting jaunt.
While her husband is getting his infusion, she runs errands such as going to a grocery store to get things she can’t get in her hometown. She puts frozen water bottles in a cooler, so she can purchase anything she wants and it will make it home just fine. This means a lot to her and is another happy point to the trip.
A Whole Lot of Love
Next, Renata thought of how she could jazz up the day to make it one to look forward to, a way to convey a whole lot of love. Knowing the infusion makes her husband feel much better is enough to make the outing a special one. But, she wanted to do more to make it a time they would look forward to.
So, to make this trip really special, Renata dresses up for a nice lunch they share after the infusion, preferably outside! It has become a date!
Oh, by the way, no cell phones. This is time carved out for each other!
As Renata has shared about these monthly trips, I have been struck by how they have turned what was thought to be a burden into a beautiful time together. It is so sweet to hear the love in her voice as she tells me about their trip.
This has inspired me to look for ways that I can make the necessary parts of caring for my rheumatoid arthritis (RA) more pleasant and enjoyable. Something as simple as treating myself with a latte after my blood draw for routine labs. Some call this self care. I’m all about it.
This is a way to alleviate some of the stress inherent in having to keep appointments and tending to an autoimmune disease. This addresses the R in my *FRESH* approach to self care.
Renata saw the need, her husbands biologic infusion about two hours from home. Then she got creative as to how she could help make it more pleasant, and added a whole lot of love to make it a special time they could look forward to instead of dreading.
How do you use a little creativity to better meet a need caring for your autoimmune disease? Leave a comment below!
And that is using Arthritis Wisdom.
photo credit: Sandra Frey at Unsplash